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Australia allocates $120 million AUD to the Medical Research Future Fund (MRFF), with specific inclusion of Long COVID!
This is incredibly positive news! 🙌🙌🙌
The Australian government has officially announced a funding commitment of $120.1M AUD through the Medical Research Future Fund (MRFF). This investment is designated to support 60 health and medical research projects focused on advancing the prevention, diagnosis, treatment, and care of a wide range of diseases.
Significantly, 13 of these projects are dedicated specifically to the post-acute sequelae of COVID-19. These initiatives will investigate underlying causes, develop better diagnostics, improve symptom management, and research targeted treatments.
In addition to COVID-related research, the funding will facilitate 27 new clinical trials to test treatments for rare cancers and rare diseases, as well as 12 respiratory research projects aimed at enhancing the detection and care of chronic respiratory conditions.
Furthermore, the initiative allocates resources to 8 projects designed to optimize how patient data is utilized in health technology assessment. This ensures that patient insights effectively inform health system decisions and care delivery.
We are always grateful to see governments treating COVID and Long COVID with the seriousness they require. Although research still lags behind where it needs to be, the accumulating scientific evidence clearly demonstrates that this is a crisis demanding urgent attention.
It is very encouraging to see Australia establish this fund—we look forward to seeing what these projects uncover!
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This is incredibly positive news! 🙌🙌🙌
The Australian government has officially announced a funding commitment of $120.1M AUD through the Medical Research Future Fund (MRFF). This investment is designated to support 60 health and medical research projects focused on advancing the prevention, diagnosis, treatment, and care of a wide range of diseases.
Significantly, 13 of these projects are dedicated specifically to the post-acute sequelae of COVID-19. These initiatives will investigate underlying causes, develop better diagnostics, improve symptom management, and research targeted treatments.
In addition to COVID-related research, the funding will facilitate 27 new clinical trials to test treatments for rare cancers and rare diseases, as well as 12 respiratory research projects aimed at enhancing the detection and care of chronic respiratory conditions.
Furthermore, the initiative allocates resources to 8 projects designed to optimize how patient data is utilized in health technology assessment. This ensures that patient insights effectively inform health system decisions and care delivery.
We are always grateful to see governments treating COVID and Long COVID with the seriousness they require. Although research still lags behind where it needs to be, the accumulating scientific evidence clearly demonstrates that this is a crisis demanding urgent attention.
It is very encouraging to see Australia establish this fund—we look forward to seeing what these projects uncover!
1/
New research on neurological Long COVID recovery 🧠
A recent study published in BMC Neurology monitored people living with neurological Long COVID using a mobile app to track symptoms and overall recovery for 3 months—approximately one year after their initial COVID infection.
What did the study find?
👉 About 4 in 10 people reported gradual improvement over time.
👉 Recovery was often non-linear—ups and downs were common, even among those who improved.
👉 Certain groups, including women and people with persistent loss of smell or taste, were less likely to report improvement during the study period.
👉 Those who improved showed trends toward better thinking speed and enhanced sleep.
👉 Participants found the symptom-tracking app easy to use and helpful, demonstrating that digital tools can support Long COVID care and research.
🔍 Why this matters:
This study highlights how variable and individualized neurological Long COVID recovery can be, and why ongoing symptom tracking and patient-reported experiences are essential for understanding—and improving—care.
📄 Read the full open-access paper: 👇
A recent study published in BMC Neurology monitored people living with neurological Long COVID using a mobile app to track symptoms and overall recovery for 3 months—approximately one year after their initial COVID infection.
What did the study find?
👉 About 4 in 10 people reported gradual improvement over time.
👉 Recovery was often non-linear—ups and downs were common, even among those who improved.
👉 Certain groups, including women and people with persistent loss of smell or taste, were less likely to report improvement during the study period.
👉 Those who improved showed trends toward better thinking speed and enhanced sleep.
👉 Participants found the symptom-tracking app easy to use and helpful, demonstrating that digital tools can support Long COVID care and research.
🔍 Why this matters:
This study highlights how variable and individualized neurological Long COVID recovery can be, and why ongoing symptom tracking and patient-reported experiences are essential for understanding—and improving—care.
📄 Read the full open-access paper: 👇
Here is an insightful comment from a member of our Long COVID Labs subreddit! 👇
We are only just beginning to uncover the role viruses have played in our biology. While our focus is on COVID-19, other viruses such as Epstein-Barr are likely at the root of many diseases! 🦠
Although the impact of these diseases has been unspeakably devastating, we are excited by the possibilities as science discovers new ways to prevent and treat these infections! 🙏
We are only just beginning to uncover the role viruses have played in our biology. While our focus is on COVID-19, other viruses such as Epstein-Barr are likely at the root of many diseases! 🦠
Although the impact of these diseases has been unspeakably devastating, we are excited by the possibilities as science discovers new ways to prevent and treat these infections! 🙏
I truly appreciated this comprehensive roundup of new papers from LC patient and blogger Brandon! ✨
The theme of this week's roundup highlights that "Long COVID research is starting to connect dots that used to feel totally separate."
It is wonderful when we in the Long COVID community can maintain hope and optimism—definitely check this out! Thank you, Brandon, for the comprehensive write-up! 🙏
The theme of this week's roundup highlights that "Long COVID research is starting to connect dots that used to feel totally separate."
It is wonderful when we in the Long COVID community can maintain hope and optimism—definitely check this out! Thank you, Brandon, for the comprehensive write-up! 🙏
Intriguing news! It seems that lidocaine injections, a widely recognized and generally safe local anesthetic, are providing relief for certain patients suffering from Long COVID symptoms! 👇
https://www.reddit.com/r/covidlonghaulers/s/FApBHRqGtb
https://www.reddit.com/r/covidlonghaulers/s/FApBHRqGtb
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We are thrilled to announce the distribution of our Patient Grants!
Our mission is to support individuals facing Long COVID in obtaining treatments that may otherwise be out of reach.
With a total of $100,000 allocated, our Patient Grant Fund stands as the most extensive direct-to-patient initiative for those affected by Long COVID to date. We are pleased to inform you that all funds have been successfully distributed. We appreciate the community's involvement and eagerly await updates on everyone’s treatment journeys!
A heartfelt thank you to this patient for her thoughtful words 🙏
(Shared with permission!)
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We are thrilled to announce the distribution of our Patient Grants!
Our mission is to support individuals facing Long COVID in obtaining treatments that may otherwise be out of reach.
With a total of $100,000 allocated, our Patient Grant Fund stands as the most extensive direct-to-patient initiative for those affected by Long COVID to date. We are pleased to inform you that all funds have been successfully distributed. We appreciate the community's involvement and eagerly await updates on everyone’s treatment journeys!
A heartfelt thank you to this patient for her thoughtful words 🙏
(Shared with permission!)
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